Life is a Journey

My son, Alex, is 3 1/2 years old. He was diagnosed with Mowat-Wilson Syndrome at 5 days old. My son, Aaron, is highly active, extremely creatively bright. My daughter, Sydney, is verbal, talented, and snarkily beautiful. I have so many thoughts about life.... they don't hear me now.... maybe they will someday. :)

Thursday, January 12, 2012

Websites I need to keep

http://eyeep.com/
IEP's for kids with vision issues.  Good advice for mom's with regards to IEP's in general.

http://www.theimaginationtree.com/2011/12/top-10-sensory-play-ideas-from-2011.html
http://creativewithkids.com/wp-content/uploads/2011/05/PrintableSensoryActivityList1.pdf
Help in getting my son over his tactile and other sensory issues



MOWAT- WILSON INFORMATION
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3172917/

http://ghr.nlm.nih.gov/condition/mowat-wilson-syndrome

http://jmg.bmj.com/content/40/8/640.full.pdf

http://www.ncbi.nlm.nih.gov/books/NBK1412/

https://groups.google.com/forum/?fromgroups#!forum/mowat-wilson-community

http://www.ojrd.com/content/2/1/42

http://www.rarechromo.org/html/home.asp





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